The XX International Conference on Duchenne and Becker Muscular Dystrophy (DMD/BMD),, organized by Parent Project, will take place from Friday 17 to Sunday 19 February in Romeat the Ergife Palace Hotel.
This meeting - full of opportunities for information and scientifical updates - is finally back in presence. A large part of the international DMD and BMD community - patients, family members, volunteers, organizations, clinicians, researchers and pharmaceutical companies - will meet again.
The claim of the 2023 Conference will be Together we are the futureto represent the projection of the Duchenne and Becker community towards progress in research and in the social field, with all the strength that comes from sharing and networking.
Ezio Magnano - Ilaria Zito - Emanuela Giulitti - Tiziana D’Auria - Cristina Bella, Parent Project aps
Marica Pugliese, Parent Project aps
Laura Gentile, Omar
Bianca Ragona - Giacomo Buccella, Parent Project aps
Simona Bertoli, Università degli Studi di Milano
Paolo Alfieri - Francesca Cumbo, Ospedale Pediatrico Bambino Gesù , Rome
Giancarlo Onger, Coordinamento Nazionale Insegnanti Sostegno
Fabrizio Corradi, Istituto “Leonarda Vaccari”
This round table talks about the experience of being a caregiver, emphasizing the bureaucratic, psychosocial and experiential aspects, through the intervention of experts and direct testimonies.
Tiziana D’Auria - Parent Project aps
Carlo Giacobini - Società Cooperativa sociale Esplicando
Giada Perinel - Parent Project aps
Testimonies from families: Jacopo Verardo - Daniela Gallo - Alberto Di Grazia - Cettina Alì
Silvia Brunelli - Università degli Studi Milan- Bicocca
Gloria Antonini - Parent Project aps
Michela Catteruccia – Ospedale Pediatrico Bambino Gesù di Roma
Emilio Albamonte – Centro Clinico NeMO di Milano
Q&A with:
Italfarmaco,
Edgewise Therapeutics,
Cumberland,
Antisense Therapeutics,
Guglieri per Studio FOR-DMD
Santhera Pharmaceuticals,
Fibrogen
Emanuela Giulitti - Parent Project aps
Ilaria Zito - Parent Project aps
Daniela Zuccarello – Ospedale Universitario di Padova, Network italiano PGT (N.I.D.O.)
Andrea Gallinelli – AUSL di Ferrara
Marina Forte – IVI Roma
Ilaria Zito - Parent Project aps
Alessandra Ferlini - Ospedale Universitario
Sant’Anna di Ferrara
Marika Pane - Centro Clinico NeMO di
Rome
Domande e risposte con:
Sarepta Therapeutics,
Wave Lifesciences,
M. Pane per NS-Pharma
BioMarin Pharmaceutical,
Dyne Therapeutics,
Avidity Biosciences,
PepGen
Fernanda De Angelis - Parent Project aps
Claudio Bruno - Istituto G. Gaslini di Genova
Q&A with:
Edgewise Therapeutics,
Italfarmaco
Emergency card in Becker muscular dystrophy
Fabrizio Racca - Ospedale SS. Antonio e Biagio e Cesare Arrigo di Alessandria
Q&A
Isabella Moroni - Istituto Neurologico C. Besta di Milano
This round table addresses the topic of the rehabilitation process from the beginning of the project, through its construction and in the subsequent steps of the pathology, analyzing the different rehabilitation approaches through the intervention of technicians and direct testimonies
Emanuela Giulitti - Parent Project
Anna Lia Frongia - Fondazione UILDM di Roma- Fondazione Policlinico Universitario Agostino Gemelli
Lavinia Fanelli - Fondazione Policlinico Universitario Agostino Gemelli
Cristina Bella - Parent Project
Lucia Borgna - Oplà Studio di Neuroriabilitazione di Roma
Francesca Cumbo - Ospedale Pediatrico Bambino Gesù di Roma
Testimonies from families: Daniela Argilli - Maria Carmela Campana
Pat Moeschen - Parent Project Muscular Dystrophy
Filippo Buccella - Parent Project aps
Luca Bello - Ospedale Universitario di Padova: Emergenze e steroidi
Maria Grazia D’Angelo – IRCCS E. Medea Bosisio-Parini di Lecco: Emergenze nelle fratture
Rachele Adorisio – Ospedale Pediatrico Bambino Gesù di Roma: Emergenze cardiache
Fabrizio Racca – Ospedale SS. Antonio e Biagio e Cesare Arrigo di Alessandria: Emergenze respiratorie ed EC
Angelo Villano – Policlinico Gemelli di Roma: progetti telecardiologia e progetto monitoraggio cardiorespiratorio
Q&A
Pat Moeschen - Parent Project Muscular Dystrophy
Fernanda De Angelis - Parent Project aps
Eugenio Mercuri - Policlinico Gemelli di Roma
Giacomo Comi – Policlinico di Milano
Q&A with:
Pfizer,
Solid Biosciences,
Roche,
RegenXbio
This session aims at addressing the aspects that most characterize the choice to participate in a clinical trial. Different points of view will be explored with the different actors involved.
Marica Pugliese - Parent Project aps
Marika Pane - Centro Clinico Nemo Roma
Francesca Magri - Policlinico Milano
Anna Petruzza - Parent Project aps
Testimonies from families: Alberto Bottaro - Debora Grandinetti - Matteo Tosetti
Carlo Giacobini - Società Cooperativa sociale Esplicando
Annemieke Aartsma-Rus - Università di Leiden
Q&A
Valeria Catarraso - Parent Project aps
Carmen Rocca Sileo - Parent Project aps
Vincenzo Santucci - Consigliere Federale della FIB (federazione italiana boccia paralimpica)
Nino Diana - ASH Baskin Taranto Affiliazione con CSI centro sportivo Italiano
Francesco G. Manfredi - Neuro Ortopedia Ospedale Giovanni XXIII Bari
Melchiorre Ragona - ASD Albalonga Wheelchair Hockey
Testimonies from families: Samuele Ragona - Luca Montevecchi - Gabriele Zendron - Stefano Dorgia
Elite
Silver
Bronze
Platinum
Bronze
Bronze
Platinum
Bronze
Bronze
Gold
Bronze
Bronze
With the unconditional contribution of
17 - 19 February 2023
Ergife Palace Hotel
Largo Mossa 8
Rome