Operating instructions

For the second consecutive year the event will be in streaming; recent evolutions in the Covid-19 situation have led to the choice of a solution that fully protects the safety of all people in the patients community.

The most recent updates on research and clinical studies will be dealt with in scientific sessions. These will alternate with parallel sessions on issues related to daily life and sessions dedicated to psychosocial aspects, with direct testimonies from the community of patients and families.

Platform

The Conference will be held on the Zoom platform.  To make the best use of the platform functionality you must download the Zoom app on the device you will be using (smartphone, tablet or pc) and update it to the latest version. You can download the app at the following link: https://zoom.us/

Following the Conference

The Conference will open on Thursday the 17th of February. To follow the live event, after downloading the Zoom app, you must connect to the Conference website: Conferenza.parentproject.it, and click on the AGENDA option from the menu. The 4 days agenda will be displayed. By clicking on LIVE STREAM you will automatically be directed to the Zoom link of the relative session. Once the session is over, you will simply need to close Zoom and connect to the following session, repeating the same procedure through the Conference website: Conferenza.parentproject.it.

Translation

A simultaneous translation in English and Italian will be available. To choose the correct language you will need to click on the Interpretation” icon (on the bottom right hand side of the Zoom toolbar) and select the language. You can mute the original audio to listen to the language of choice without background noise .

Conference opening

The Conference will open on Thursday the 17th of February at 16:45 (timings in CET), with a 15 minutes welcoming session.

Parallel Sessions

During the 4 Conference days there will be moments dedicated to the parallel sessions.

Thursday the 17th from 17:00 to 18:30 (timings in CET):

– Laws, rights and bureaucracy (Italian only)

– Integrating and learning: school integration (Italian only)

– A journey through time: BMD, between experiences and life projects

  • Im here too. Being a sibling of a DMD/BMD patient

Friday the 18th, from 18:30 to 19:30 (timings in CET):

– Easy life. Home automation at the service of the community (Italian only)

– Respiratory physiotherapy for kids and adults (Italian only)

– When complexity increases. DMD/BMD and related issues

– What we eat matters. Nutritional aspects in DMD and BMD 

Saturday the 19th, from 18:00 (timings in CET):

– Affectivity and sexuality: a moment of confrontation

During the parallel sessions it will be possible to ask questions by typing them in the Zoom chat or by clicking on the  icon to request a live intervention. Your audio and video will be turned on when it is your turn to intervene. The parallel sessions will be recorded and available in the following days on the Conference webpage: Conferenza.parentproject.it

Plenary sessions

On Friday at 16:00 (timing in CET) the plenary session will commence. The plenary sessions will be run like Zoom webinars, where participants can only see the speakers and moderators on screen. For each session you will have the possibility to ask questions, by typing them in the dedicated Q&A” Zoom chat. The questions will be visible only to speakers and moderators, who will read them in the moment allocated to questions and answers.

Social Media

The International Conference will also be live streaming, on our Facebook and YouTube channels.

@parent project aps (Facebook)

@parent_project (TwiBer)

@parent_project_aps (Instagram)

Parent Project aps (YouTube)

You can post, share and publish pictures and/or comments using the following hashtags:

#Confpp22

#parentproject

For any information, our staff is available on the following numbers:

– 3423289199 Scientific Office;

– 3495100478 Fundraising Office.